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  • The Hydrocephalus Association Mission:

    To eliminate the challenges of hydrocephalus.


    Hydrocephalus (hī′drō-sef′ă-lŭs) is an abnormal accumulation of cerebrospinal fluid (CSF) within cavities of the brain called ventricles.

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    Welcome to the Hydrocephalus Association website and to our hydrocephalus community. We hope that the information and support you find here will be of help.


    From The Blog

    By Jordan Faigen, National Campaigns Manager

    walk collageThroughout the 2011 WALK season I have worked with over 60 WALK Chairs to coordinate 30 plus events all over the country. The Hydrocephalus Association’s (HA) WALK program started in 1983 with a few families walking across the Bay Bridge in San Francisco, CA to support each other and raise hydrocephalus awareness. Today, HA has expanded this tradition of building strength in numbers with the help of our fearless and devoted WALK Chairs who never cease to provide welcoming and empowering WALKs to the community. (more…)


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    Hydrocephalus Snowshoe Event Makes Local Paper

    The Inaugural Snowshoe Event in Steamboat Springs, CO was featured in the latest edition of Steamboat Today.  It’s an excellent piece that talks about hydrocephalus, the state of research and treatment and features the event organizer Christian Karch, his wife Laura and daughter Sofia who is living with hydrocephalus.

    Click here to read the article.

    Click here to participate/donate.